The Rarer Cancers Forum/Foundation

The Rarer Cancers Foundation (incorporating the Rarer Cancers Forum) was founded in 2001. Our mission is ‘to ensure that people with rarer cancers have access to the best services and outcomes’, we raise awareness for people affected by rare or less common cancers in fact the charity is truly focused and inspired by the needs of patients and their families.

Research shows that there are more than a quarter of a million people diagnosed with cancer in the UK each year. Overall it is estimated that one in three will develop some form of cancer in their lifetime. Up to 122,500 people will be diagnosed with a rarer cancer every year.

There are more than 200 different types of cancer but four of them (lung, breast, bowel and prostate) account for just over half of all new cases.  Those with a rarer or less common cancer make up nearly 50% of new cases of cancer each year, making this patient population the largest group overall but with the slowest diagnosis, fewest drugs, least research, least information and the poorest services.  Rare and less common cancers include kidney, pancreatic, ovarian, leukaemia and liver to name but a few.

What we do:

  • Provide a bespoke helpline to both patients, GP’s and health professionals
  • Enable supportive networking for patients, carers and clinicians
  • Raise awareness
  • Campaign for change at Government level
  • Give a voice to ‘forgotten’ cancers
  • Undertake research based projects for improvement of patient care and diagnosis
  • Organise conferences for patients and health Professionals
  • Produce both generic and tumour specific patient information literature

Understandably people with less common or rare cancers often feel isolated and find it difficult to get accurate information about their illness. Through our bespoke helpline we offer advice and information and put people in touch with others for support.

We continually work to raise awareness of less common cancers, and work to secure the best possible services for patients and their families.

Our public policy programme is set out to encourage recognition of the specific issues facing people with rare and less common forms of cancers and the difficulties faced by clinicians and patients to gain access to the most appropriate forms of treatment.

Debbie de Boltz, Executive Director

Rarer Cancers Foundation, incorporating the Rarer Cancers Forum


About bmitzi

Medical writer, author, artist. Cancer campaigner. Aiming always to improve health services and bring compassion into health care.
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