National Cancer Patient Experience Survey (NCPES) 2013

http://www.macmillan.org.uk/Aboutus/News/Latest_News/MacmillanCancerSupportrespondstotheNationalCancerPatientExperienceSurvey201213.aspx

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About bmitzi

Medical writer, author, artist. Cancer campaigner. Aiming always to improve health services and bring compassion into health care.
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4 Responses to National Cancer Patient Experience Survey (NCPES) 2013

  1. Mark says:

    Rather odd survey findings here: ” Macmillan’s analysis shows that the treatment of hospital staff is intrinsically linked to this. Happy staff means happy patients. Conversely, where staff suffer high levels of discrimination or harassment, cancer patients are up to 18 times more likely to receive poor care ” – so what are patients supposed to do ?Offer the staff counselling?

    • bmitzi says:

      This finding about the impact of poor quality care from unhappy or over-stressed staff will not just apply to cancer patients. Underfunding, understaffing, the burden of paperwork, targets etc – apart from the hierarchical system, fear of job cuts etc etc can all contribute to squeeze out compassion and humanity in today’s care systems. Then scandals such as Bristol, mid-Staffs etc do little for morale. What must it be like to train for and work in a caring profession, hoping to do good, when all you get is criticism and media blasting…it’s easy to see how people can shut down.

      That’s why there is now a growing call for more compassion in healthcare (see Kings Fund – try googling ‘compassion healthcare’) and why Robin Youngson, an anaesthetist from New Zealand who experienced lack of compassion in his family’s care, set up http://www.heartsinhealthcare.com – an online worldwide community of patients and healthcare professionals – where concerns and innovative compassionate practice can be shared.

      As a patient, and one who has been harmed as well as cured by health professionals, it’s enormously uplifting for me to read what the professionals write on that site – and to be in touch with truly caring doctors, nurses and others – helps keep a sense of perspective.

      It really can be very difficult for health professionals to show compassion when it is steadily being knocked out of them, when they need support themselves. Being ‘professional’ does not automatically mean people are no longer affected by the bad things in their lives. They are human. But when too much pressure is put on someone, inhumanity can result. It’s more complicated than this of course, but I think there is a great need to work towards making healthcare compassionate and safe, not only for patients, but for those who care for and treat them.

  2. Interesting survey – trust me to live in London, where 9 out of the 10 worst-performing hospitals are situated! But even ‘naming and shaming’ doesn’t seem to make them improve!

    Don’t know if you saw the Breast Cancer Care research into side effects of Tamoxifen? Noticed that Macmillan jumped pretty smartly onto bandwagon, but when I phoned to say that if they had discovered there were 1/2 million of us (it’s only taken eight years for them to discover this!) what were they going to do to help us – needless to say answer is NOTHING!

    Verite

    • bmitzi says:

      Yes, London hospitals’ performance not confidence building! I didn’t see BCC research re side effects Tamoxifen – but have certainly experienced them – had to give up my fine art degree for a year and then downgraded from BA Hons to straight BA so that I could complete earlier as side effects so dire – and know how others have suffered.
      I noticed something about ‘new treatment’ for women most at risk of breast cancer – in a post on Facebook or LinkedIn I think, and questioned whether anyone would be telling them honestly about the side effects as women still being invited to breast cancer screening (despite the known harms) still are not being told the truth.
      I see Canada is now looking into the overdiagnosis/overtreatment and health checks issues (this week in bmj).
      Things…can only get better…

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