A colleague of mine tried to raise concerns about serious shortcomings with her local hospital’s Patient Experience Group. Although she did it in the nicest possible way, she was expelled from the group.
User involvement groups need ‘people who do not doubt our good intentions, but are prepared to tell us things others are not’ (Dr Helen Williams, founding Chair of the Lay Advisory Committee of the Royal College of Pathologists – quoted in ‘Nothing Personal, disturbing undercurrents in cancer care – Radcliffe Publishing – Medical Journalists’ Association Open Book Award 2009) .
Nothing Personal: Disturbing Undercurrents in Cancer Care
Used in medical education.
Includes referenced discussion sections for evidence-based practice.
- Medical Journalists' Association Open Book Award
"A landmark for the patient voice"
- Macmillan Cancer Support
"A remarkable book... essential reading for all who deal with cancer patients - health professionals, politicians, health service developers, carers and, of course, patients themselves... will surely inspire change."
- Professor Karol Sikora in his foreword.