Play the game and help cancer research

Public is asked to play free smartphone game to help cancer research: BMJ 2014;348:g1392
http://www.bmj.com/content/348/bmj.f7656?etoc=

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About bmitzi

Medical writer, author, artist. Cancer campaigner. Aiming always to improve health services and bring compassion into health care.
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4 Responses to Play the game and help cancer research

  1. moira adams says:

    Mitzi, this link is about neuropathic pain, not playing games from Cancer Research

  2. Mitzi

    You have reminded me about the APPG conference on Cancer, which should be coming up next December.

    I didn’t go last year (and know several stalwarts who were also absent), because it just seemed to me that it was re-hashing what had been discussed ever since the first meeting I attended in 2008.

    However, there is obviously a lot of funding floating around, and with elections coming up next year, would it be a good idea to strike whilst ‘iron hot’ etc and get discussions going on what means something to us patients – rather than what Macmillan etc. wants to promote?

    I was thinking that perhaps a session on mammograms ?

    And I would like to have a face-to-dace dialogue with some of the usual suspects that turn up. Get them on the spot and ask what is being done about survivorship – with particular reference to Macmillan’s report on long-term side effects of Tamoxifen.

    If you think my ideas useful,, let’s co-ordinate an ‘attack’ to get APPG to actually set up sessions that have some relevance – and not just regurgitate the usual platitudes which are never acted on!

    Verite

    • bmitzi says:

      Hi Verite. Re mammograms, it would need those with specialist knowledge and understanding of research in this subject to be able to give reliable presentations eg M Baum, Peter C Gotzsche – because it is too easy to dismiss over diagnosis if there is insufficient understanding of research methodology etc. To my mind, we need to wait for the outcome of the Parliamentary Inquiry into screening. I just wish we could point out some of the flaws in some of the submissions to that inquiry! Apart from the Inquiry, getting politicians involved in healthcare decisions seems a particularly bad move – eg lobbyists from a cancer charity were sent to put pressure on their MPs to extend the age range of breast screening, despite mounting research findings showing the appalling levels of harms of screening – and most of them (and many doctors!) simply do not understand the research. And with elections coming up, many MPs will fear that if breast screening is not kept as it is they will lose votes because the public mostly does not understand about the harms outweighing the benefit, if any – too many years being fed less than the truth.
      I’m very interested in the fact the age extension RCT continued during the Independent Review and continues during the Inquiry – and there are many unsatisfactory aspects including no formal consent process – and women are not even told explicitly that they are taking part in the RCT if they consent to participation in the age extension screening. I’m also very interested in recording the consultation – it would be a major step towards patient autonomy and patients owning their records. Would you like to email me?

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