‘Nothing Personal, disturbing undercurrents in cancer care’ was published by Radcliffe in 2008, and was aimed mainly at medical education. It not only recounts my cancer experiences from 1990, but has discussion sections throughout and offers links to better/evidence based practice after each event.
The intervening years to date have been spent trying to improve health services, and the book mentions some of my service user involvement activities, working alongside health professionals in partnership groups etc. But in all those years, what has changed? Surely, the numbers of reports and new guidance churned out during that time should mean there is nothing left to improve. Although there have been changes, eg patients now get more information, patients’ stories still give cause for concern and scandals continue to reinforce the need for action.
The issues from Nothing Personal live on, so maybe I need to promote it with a series of quotes.
Here is the first – a quote from Professor Karol Sikora who wrote the foreword:
‘This is essential reading for all who deal with cancer patients – health professionals, politicians, health service developers, carers and, of course, patients themselves….Above all the powerful message of this book is to be honest. Lying, even with the best intentions, simply doesn’t work. Trust is an essential component of the vital partnership between patient and professional.’